I Am Focused on Ending My PKD With Diet and Fasting

This is my story and I am not advocating any type of diet or advice, just sharing what I’ve found and read on this subject.

I didn’t want it, had never heard of it, and discovered I had it out of the blue at the age of 55. Cysts on my kidneys – lots of them. I can still remember the awe on the doctor’s face when he told me of all those cysts.

No wonder I had so much trouble trying to lose weight. It was not necessarily fat, but cysts that were crowding my insides.

I liken it to little (and big) water balloons bouncing along inside my gut day and night. They don’t pop or ever go away, they grow. And more of them show up as they please to add to the weight and expansion of my belly. They hurt too. My lower back aches most of the time. I wake up in the morning feeling full and heavy. It’s miserable. But for those who have PKD, you know this, because you feel the same. We have consistently been told that there is no cure – yet, and therefore no hope for relief.

My New Eating and Fasting Plan

Now there is hope folks! I was so excited to begin my new diet and fasting plan. I wish I could have found more information, but I think I get the gist of it. Eat for a short period of the day. All the food and drinks (other than water) will be taken between 11:00am and 5:00- 6:00PM – for me, my plan. That is the timeline I have decided upon. After my time limit, I will be fasting and drinking only water, black coffee, or tea for the next 18 hours.

If it’s good enough for mice, rats and cats, then I can try it. Coincidentally, I watched a show called “Fat Fiction” on HBO the other day. After that I watched a show about fasting. Then, I read that research shows that a combination of a variation of the Keto diet (eating to cause ketosis) combined with fasting, has shown a reversal of kidney cysts in test subjects (animals). That’s a big coincidence! I am amazed and excited to discover this hope!

The documentary, called “Fat Fiction” tells how good fats are necessary for health. I knew this. My Homeopathic doctor had mentioned this years ago. Do not buy low fat, or fat-free foods because sugar is added when fat is removed. Sugar is the culprit. Carbs turn into sugar and then our bodies burn that sugar, instead of burning the fat from our cells. This is how I understand it, and you can read about it for yourself. One explanation can be found at What is Ketosis.

PKD and Keto

The problem with eating a Keto diet when dealing with PKD, is that not all the food suggested is okay. Also, large amounts of sodium are not accounted for when cheese makes up the bulk of many foods – and Keto diet followers tend to eat bacon, which I avoid like the plague.

Also with kidney disease, potassium can be a problem, so food like avocados, which are big with Keto, might not be good for PKD sufferers. Then again, maybe I was getting the wrong info all along. When I look at the PKD website, there is no mention of this possible “cure”.

Fortunately, I’ve been changing my eating habits for the better over the past nine years and I think I can generally follow a low carb diet while eating enough to keep my kidneys from getting worse. I’m very used to checking labels for sodium, but checking carbs is new.

I’m going to try to stick closely to the Keto Diet guidelines for at least a little while. I’ll be careful not to load my kidneys with salt and lots of meat protein. Mainly I will eat the way I have been, with a check on the carbs as I go.

Carb Wake-up Call

Strikethroughs shows the food I ate that were not low-carb, but I had no idea. My morning fast (which began the night before): Coffee black, drank until 11AM. Then: Blender drink of carrot juice, unsweetened cranberry juice, kale, and strawberries. Baked a quiche containing eggs, Swiss cheese, spinach, broccoli and onion, in a pie crust. Ate a big piece of quiche, also toast (using up my homemade bread) with butter, almond butter and ground flax seeds. Drank a cup of goat’s milk.

Quiche with spinach and onion
Homemade quiche

Supper will be leftover zucchini boats which contain: ground beef, parmesan cheese, onions and of course zucchini, smothered in organic tomato sauce.

Noticed: I got tired after I ate my big quiche meal. Guess it could be due to the fact that spinach, eggs and cheese all contain tryptophan! Pie crust, toast and goat’s milk all contain carbs, so does that “healthy” juice I drank. I definitely did not go low-carb with this meal. In fact, when I looked, I was surprised to see that pie crust is FULL of carbs, with no benefit to me.

  • Goat’s milk – 11 grams in 1 cup milk
  • Pie crust – 12 grams carbs in one piece…!!!!! Yikes. Eat the middle but throw the crust away ;(
  • Carrot juice – 20 grams carbs in 8oz., and unsweetened cranberry juice has 18 grams of carbs in 8 oz. Keto says juice is bad for it’s carbs – yes, it’s true.

Total carbs listed above that I ate comes to 61 and that is without counting that little piece of toast. I can assume that gave me at least 10 grams of carbs. Now my total carbs for today come to over 71 grams, because I’m sure other foods had some carbs as well.

If I have a glass of wine later, and of course I will, that will also add a few carbs. Normal carb intake suggested on a regular diet is over 200, but the Keto diet suggests that number stay below 50 grams. I failed, but I will learn from my mistakes, and do better . Staying below 50 carbs is going to be tough.

Thanksgiving Approaches and Here’s Our Dinner Plan

The image above is not from my dinner table but it contains all the necessary items for a decent Thanksgiving meal, in my humble opinion.

My son smokes the turkey on the grill. He just bought his favorite Jack Daniels Wood Smoking Chips which are made from old oak barrels that once held whiskey. The turkey was delicious last year, so I am leaving it up to him. 

This will be our second year together for the holidays and the guest count total is three!  Yes, it’s a small gathering.  So the focus is on the food.

Our dinner planning has begun. Turkey, stuffing and gravy are a given.  It just wouldn’t be Thanksgiving without them.  Also high on the list is mashed potatoes, Acorn squash and rolls.  I don’t eat much bread these days, so I will most likely skip adding the rolls to my plate.

Personally I can’t eat any of it without cranberry sauce as an accompaniment.   Last year I made my own cranberry sauce and I will do so again this year.  I added the recipe to this blog so I would remember how to do it.

cranberry sauce
Boiling the cranberries

Another new thing I did last year was to make my own broth. I used the turkey innards / gizzards or whatever all that extra stuff is called that is packed inside a big frozen bird. The broth is used in place of water in gravy and stuffing. And boy does it make a difference in flavor! Any leftover would make an excellent soup stock too.

turkey stock broth
Making Stock

Many people already know to do all of this, but I didn’t grow up with a mother who was a good cook. Most of my life I had to make most of the Thanksgiving meal myself, for my husband and kids. We never had much family around. After all the cooking, serving and eating, I had the clean up.

Thanksgiving meals of old, back when I was growing up and tables had to be pushed together to seat all fo us, the menu was larger. Aunts and grandmothers slaved for days to bring their homemade specialties to the table. Boiled onions, turnips, carrots, homemade breads, and many pies and desserts we included. My grandmother made cookies called monkey faces. There were so many before-dinner appetizers I had to be careful not to fill up.

Our simple menu will also include apple pie which I will make.

I need to find some recipes for after Thanksgiving. Usually sandwiches and soup use up the leftovers nicely. This year we have a new refrigerator which means plenty of room for keeping the carcass until I can use it to make soup stock the next day.

Have a wonderful holiday!